Daliresp Experience
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I have been on Daliresp for one month. I have noticed significant improvement in my lungs. By that I mean the mucus is gone, wheezing is gone. My lungs seem to be getting clear and do not feel as heavy as they did before I started taking it. I have had my bouts of depression, I am never hungry, which is a problem because I am underweight as it is. Just wondering if anyone else has had success with this drug. I was hoping to get off oxygen at some point. Don't know if I can achieve that or not.

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122

Re: JC (# 118) Expand Referenced Message

AARP's United healthcare supplement pays for daliresp

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121

Gas, horrible gas. It does help a lot with my breathing, but I can't take the pain of the gas. It feels like labor pains. I was hoping that side effect would go away, but I gave it 2 weeks and just couldn't stand it any longer. I stopped it for 3 days, and I felt much better. Just to test it, I took a pill yesterday evening. This morning, I'm in pain again. It would be ok if I could get rid of the gas, but even GasX doesn't help. I can't get it out of me. I'd be willing to expell it anywhere and everywhere, but it's stuck inside and my intestines are very sore. That's the only symptom I've had.

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120

Lynn (# 71)

I just got my first order of daliresp from canada. Planet Drugs Direct 3 months for $260.00. Have been ordering other medicines from them for years and have been very satisfied. The only negative is it takes a while to get it. I have taken it for 4 days and have been coughing up a lot of mucus. Sure hope it helps.

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119

Re: frank (# 3) Expand Referenced Message

If it is going to work for you, you will know right away. I knew within a week. There is no in between. It does or it doesn't. I understand it works well only in about 10% of the people. Thank goodness it did for me. Now to pay for it. My insurance paid but Medicare is balking.

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118

I have been taking this drug for about 6 months. I have had very good results. I have had no flare ups at all during this time. I do use oxygen at night and an inhaler in the day, but I have improved noticeably. Now I am having trouble getting Medicare to pay for it. We just went on Medicare and our group insurance was much easier. I'm thinking of tahing a trip to Mexico (I live in Texas) to purchase it. Any thoughts? I have lost weight but I have made an effort to lose.

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117

Can I just stop taking daliresp or do I have to wean off it? I have been taking it for several years and my doctor said I should stop taking it.

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116

Re: Lynn (# 13) Expand Referenced Message

I have been on Deliresp for 2 yrs. In the beginning I had bad side effects. temmer and sleeplessness. I told my dr. and he prescibed two medications to conteract the bad effects. I call deliresp my miracle pill. I would hate to have to go back to how I felt before.

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115

Re: Ronny (# 109) Expand Referenced Message

Using Pepto Bismol for symptoms is great and relieves nausea.

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114

Re: Judy (# 107) Expand Referenced Message

Well, I told you in May I was trying it again, but just too many side effects while trying to get well from the other problems I stopped after a week. But, hope springs eternal and I will try it again when my only problem is COPD.

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113

Re: Lynn (# 13) Expand Referenced Message

Thank you for saying to stick to it, I am having insomnia, runny nose and back ache but worth it as you say

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112

Re: Shan (# 98) Expand Referenced Message

asked your doctor about vitamin e 200 or 400 mg about three times a week it is very good for leg cramps

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111

Yes .Medicaid pays but you have to get medical approval first

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110

Thank you for the info about not giving up on taking daliresp cause I start than stop but I am so tired of not being a left to breath unless I take prenizone so I am trying again it with half of 500 everyday

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109

I had previously taken daliresp with no side effects. Went off it for four months and resumed three days ago. I am experiencing nausea and would like to know (1) how long this side effect lasts and (2) what can I do to relieve the nausea?

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108

How old are you? What kind of surgery did you have in FL? Thank you.

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107

I started looking at this chat room this morning and I'm so impressed that Lynn and Darlene are still posting since 2011. I've tried Daliresp twice and had to quit because of side effects. I'm in late stage COPD and suffering since Nov. with cold & flu-like symptoms. I had a Mastectomy 2 weeks ago and my Pulmonary doctor has upped my meds and put me back on Daliresp. Reading your messages is really helping me want to stay with it. As of three days ago my breathing got much worse and yesterday was my first dose of it. I really want to stay with it.

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106

Can you take half a dose of daliresp (250 mg)? The full 500mg dose is causing me to cough constantly. Also, how long does daliresp remain in your system?

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105

Yes but your doctor has to get the medical approvement first

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104

I HAVE BEEN ON DALIRESP FOR ALMOST 3 WKS. IT HAS DONE WONDERS FOR MY COPD. GOING TO HAVE TO GO OFF IT BECAUSE ITS COST
ADAVISVISCANT PAY FOR IT. DOES ANYONE KNOW IF MEDICARE PAYS?

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103

Am on it and very scared of the side affects but now my panic attack are worse not sure I want this

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